2017 CLL Diagnosis and Treatment Assessment: The Patient View 
(2017 CLLDATA)
1%
Exit Survey
 
 
Please help us by participating in an important survey for patients with chronic lymphocytic leukemia (CLL).

The CLL Society Inc. (CLLS) is conducting a research survey. The purpose of the survey is to help us better understand how CLL/SLL (chronic lymphocytic leukemia/small lymphocytic lymphoma) and the treatments you receive have affected your life and the lives of those around you. We also want to know about what services and information you most value. Your answers will be used to improve our services and patient programs—and possibly how doctors treat CLL/SLL. For convenience throughout the survey, when we use the term CLL, we are referring to CLL/SLL.

Your answers will be 100% confidential and will not be connected to you in any way.

The answers you and other patients provide will be carefully combined and analyzed to create an overall picture of how CLL and its treatment affect the lives of people with CLL. Our goal is to understand CLL from the patient's perspective. Data collection and analysis will occur in strict compliance with all institutional review board guidelines and policies for research studies. The data will also be reviewed by members of the CLLS Medical Advisory Board to ensure full compliance. The findings from this study may be presented or published by the CLL Society Inc. and the participating investigators.

At the end of the survey, you can choose to participate in the Target gift code offer. You will be forwarded to a fulfillment web site that is separate from this survey. The first 500 patients who complete the entire survey will be eligible to receive a $50 gift code that can be spent on the Target.com website, or used within their stores. This research is funded through unrestricted grants from AbbVie, AstraZeneca, Celgene, Pharmacyclics-Janssen, Sunesis, and Verastem.

What else do you need to know before taking the survey?

•The survey is being sponsored by the CLL Society Inc.

•It is open to all patients with a diagnosis of CLL (chronic lymphocytic leukemia) in the United States.

•The survey should take you about 30 minutes to complete.

•Our goal is for 500 patients to take the survey.

•The survey is 100% voluntary and anonymous.

•No personal information will be asked from you at any time within the survey (such as your name, address, credit card information, etc.).

•There are no anticipated risks or benefits to you.

Getting started:

•You may complete the survey yourself. Patients may have a family member or caregiver assist them.

•You can choose not to participate or you can stop this survey at any time, for any reason.

Your voice matters:

The survey will start by asking you to provide opinions about when you were diagnosed with CLL and testing or treatments you may have received. Next, you will be asked questions about education you received and then your age and medical history as it relates to your CLL.

If you have any questions, please email us at research@cllsociety.org or call 949-667-4CLL. 

If you understand and consent to participate, please click "Next" to start the survey..